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just2sweet318

just2sweet318 started this conversation
I'm a single mother of 2 boys, ages 18 and 26. My youngest lives with me and my older son is now married to a wonderful girl and they are back in Oklahoma! I was  re-diagnosed with Multiple Sclerosis...December 2006. Originally diagnosed in 1997, I worked thru the many problems this disease afforded me, w/o insurance or a doctor per se...until an enjoyable yet extremely physically hard job brought about, little by little, regularly occuring symptoms of MS. I quit that job after over 2 years in hopes that I might be able to go back to work after a short break. I did do so, working in the mental health field. Again, loving the work and the people, but early rising and walking  to and from work, brought on more health issues and after my brother passed away soon after beginning this job, I decided something was bound to give and I didn't want it to be me. I applied for SSI and disability, started back with medical help, and went on medication for my symptoms.

As of August of 2008, I was finally approved for disability and my payments began in November of that year. I was asked to have a payee and am lucky enough to have a good friend who agreed to take on that responsibility. You do find out who your true friends are at the most opportune moments! I know many changes will happen in my life...some of them frustrating and confusing..but mostly for the good. I actually think I will be better off than I have ever been in my life! Besides that, changes are something I've become ALL too accustomed to.

The one thing that keeps changing though,  is my diagnosis. Doctors simply cannot decide what exactly it is that I have! I understand because my symptoms can point to many things, so for now, I guess I will have to go along with the ones Social Security has given me....Fibromyalgia, Severe Depression, Chronic Fatigue Syndrome and Chronic Pain Syndrome. I guess it really doesn't matter what name it has....The symptoms exist every day! I've finally gotten a good doctor in my home town but of course that means we start over! So far, it's just managing my symptoms, but hoping for a more stable diagnoses.

 I try very hard to keep a smile on my face, remain as positive as I can for my sons. Neither of them complain and somehow still manage to worry about ME!! My youngest still rarely asks for anything and if he wants something, he saves the money he gets for birthdays, etc for it. He helps around the home...not w/o complaints mind you..he STILL is a teen!...but he generally is so good natured and happy, I cannot believe my luck as far as sons are concerned. His older brother is exactly the same...both being glad they were raised by me and in a non material world. Do you know how much I wish I could have raised them WITH those little things? But I'm glad they know unconditional love, if not anything else.

Many of the things I've written of earlier are still the same...I don't work outside the home, I still haven't taken up photography. I finally have a car but had to trade in my 2008 for an older car. My oldest son had loaned me money so I wouldn't get kicked out of my home and I wanted to pay him back. I lost my housing and my food stamps aren't enough to feed ONE person but still, I do my best to take care of my family and for the most part, that's exactly what I accomplish from month to month.

Don't get me wrong...life is and will be frustrating still. Having additional funds does not change my health or the new and old symptoms that come along with it. Tears still flow freely from time to time. I still feel 'stranded', alone, and frustrated from time to time. Yet, I still must keep positive thoughts going thru my mind and in my life. If I do so, positive things cannot help coming into my world and the prayers I hold for others will have that much more of a positive outcome.

So, if you need an ear, someone to talk to, or even just a place to gripe and get those feelings out....please don't hesitate to write. It may take me a minute but I will do my best to help out in whatever way I can.     
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macdoodle
 in response to pattydothis...   

 good luck...

should be some utiltiy bill help... but 4100? i doubt. that's a heck of a bill and period of no pay.

special funds through a seperate fund  thru your utitlity company may be available

if you financially qualify

or call  county social services.

ENERGY, free grants: help with utilties and finding government grants

i am looking for assistance in paying for utilities and also how to find free government grants. i search the web but all the sites wants money to tell you ...

help-with-utilties-and-finding-government-grants.app-olantern-1.aidpage. com/ - 75k - 

reply to macdoodle
pattydothis

I know how you feel, i too have MS and my life is bad too and i cant get any help.Once ms entered my life everything went bad.I have 2 kids too.I never thought in my life time that if i got sick there would be no help for me, or that i would feel so along with no one to turn to for help. What has this world turned into that you cant get help when you need it.I go out of my way to help people if they needed it if i had it and you needed it i would give it to you.When i was growing up i never dream of being ill and along with no help. My husband does his best but we just cant make the electric bill its 4100 and they are going to shut if off, they dont care that my medicine needs to be in the refidgerator. IS there any one that can help us

reply to pattydothis